Thursday, September 16, 2010

The Unexpected Journey

I was thinking yesterday that I feel somewhat like Dorothy in the Wizard of Oz! You know, just living my life as I always do when suddenly there is a tornado out of nowhere, my whole house (life) is picked up and plopped down in some strange land. I have this feeling all the time of "Whose life is this that I have found myself in?! It sure isn't mine..."

But it IS mine now, like it or not. I'm starting out on a new and unexpected journey and I've created this blog because so many of you want to know the details of what has happened and how I am doing. I'm finding that it is exhausting to tell the story and the latest over and over to each invidual person, and this approach helps me conserve my energy and focus on resting and healing.

Thanks for checking in here and caring, and thank you so much for praying. Right now, in the early days after diagnosis, my focus is simply on getting my bearings and then I have every intention of fully engaging in what lies ahead, both the Outward and the Inward Journeys. And I know that I will be OK, and more than OK, because I am not alone. My guide is Jesus and I trust Him so much. And He has blessed me with such dear friends, too...

I've been having trouble with my knee since February....and last week I had an MRI. We fully expected the problem to be a torn meniscus and so were shocked to discover that I've been diagnosed with a rare bone disease called osteonecrosis. Basically, the bone in my knee has suffered something like a stroke. For some unknown reason, the blood supply has been cut off at some point and part of the bone in the knee has died.

This is something not often seen by physicians. My specialist has only seen it 3 times in 18 years and he says that my case is by far the worst due to how extensive the damage is and where the dead bone is located (on the weight-bearing part of the knee).

I will spend the next two months on crutches (have already been on crutches for one month), and I can't do any weight-bearing on the affected leg. Sometimes the area will heal, but the doctor isn't very hopeful that this will happen in my case. The next step would be a total knee replacement surgery.

There are many challenges...figuring out what I can and can't do at home, fighting the Kaiser system to get the care and tests I need (they won't do an MRI of my whole leg, even though it is likely that I have the condition in other joints), and starting to sort out what effect this set-back will have on my ability to work and on the Journey Center mission.

Your prayers are deeply appreciated and, I must say, it's quite different to be the one needing the prayer and support, rather than the one giving it! I am humbled and very grateful for your love and concern. (Thank you for praying for my dear husband, John, as he is ending up with quite a load on top of his usually busy life- cooking, laundry, etc. He is so kind to me!)

So, like Dorothy, I'm off on an unexpected journey! Though I long to be "home" in the life I had before the tornado, this is where I find myself now. Who knows who I will encounter along the way and what transformation I will experience and witness? I will keep you posted.... :-)

Love,
Joanna

7 comments:

  1. Dearest Joanna!
    I am so sorry you have this journey to travel but I am with you!
    You are so in my heart.
    Love and more love!
    Joanne F

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  2. May God grant you His peace as you travel this road. Know full well you do not travel alone. You are surrounded with friends and family who truly love you and Your creator and God is with you. praying for you.
    Love in Him
    Dan W.

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  3. Joanna -
    You remind me that none of us know what tomorrow holds. The beauty I see in you is that although this adventure is not one you would have chosen, you are embracing all that God has hidden in it. My prayer for you is that you will remain awake,noticing how He is moving and how He is loving you in the midst of this 'strange land'... even in the frustrations with a major medical establishment! Beware the poppy field and the tmeptaion to fall asleep! :) Rest and embrace this manadatory sabbath.
    peace to you, my friend~
    Deb (Turnow)

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  4. Joanna,
    Thank you for sharing with all of us. I can say that I know exactly how you feel when you share "whose life is this"....and "It is mine!" My heart goes out to you and want you to know that as a sojourner along a similar journey I will ask Father to bring you to my mind and heart often so I might lift you to the One who is loving as a Father and closer than a brother. May your heart be awakened again and again to the One whose love is always there. ~Lissa Hart

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  5. This is a confirmation of info you already know. It comes fom The Purpose Driven Life, pg 235. "Not only did God shape you before your birth, HE planned every day of your life to support his shaping process. David wrote, 'Every day of my life was recorded in your book. Every moment was laid out before a single day had passed.' This means that nothing that happens in you life is insignificant. God uses all of it to mold you for your ministry to others and shape you for your sevice to him.".
    ♥ Connie

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  7. You are truly amazing MA. You always find the good in the seemingly bad and find GOD in it. Keep swimming and praying and it will fall into place. I love you.

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